14Apr

Transition from pediatric to adult care in patients with epilepsy – News and discoveries by AGE Program researchers and collaborators

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Introduction

Transition in epilepsy research is significantly focused on the transition from pediatric to adult care, specially for patients with genetic epilepsies, who often suffer the most during this process.

Research papers

Andrade DM, Jetté N, Chandran I, Patel P, Rubboli G, Cross JH, Craiu D, Tan CT, Kija E, Fung E, Granata T, Hosny H, Mula M, Riney K, Shellhaas RA, Siddiqui M, Zulfiqar Ali Q, Hébert J, Marques P, Kerrigan B, Ji C, Valente K, Carrizosa J, Nabbout R.  (2025) A global perspective on transitioning from pediatric to adult care in epilepsy. Epilepsia. doi: 10.1111/epi.18670.

Zulfiqar Ali Q, Marques P, Patel P, Carrizosa J,  Nabbout R, Andrade D.M. (2024) Transition in epilepsy – A pilot study with patients in and outside of academic centers. Epilepsy & Behav. 151; 109624. https://doi.org/10.1016/j.yebeh.2024.109624

Andrade DM, Berg AT, Hood V, Knupp KG, Koh S, Laux L, Meskis MA, Miller I, Perry MS, Scheffer IE, Sullivan J, Villas N, Wirrell E. (2021) Dravet syndrome: A quick transition guide for the adult neurologist. Epilepsy Res. 177:106743. doi: 10.1016/j.eplepsyres.2021.106743.

 
Camfield PR, Andrade D, Camfield CS, Carrizosa-Moog J, Appleton R, Baulac M, Brown L, Menachem EB, Cross H, Desguerre I, Grant C, Hosny H, Jurasek L, Mula M, Pfäfflin M, Rheims S, Ring H, Shellhaas RA, Vinayan KP, Wirrell E, Nabbout R. (2019). How can transition to adult care be best orchestrated for adolescents with epilepsy? Epilepsy Behav. 93:138-147. doi: 10.1016/j.yebeh.2018.12.015
 
Andrade DM, Bassett AS, Bercovici E, Borlot F, Bui E, Camfield P, Clozza GQ, Cohen E, Gofine T, Graves L, Greenaway J, Guttman B, Guttman-Slater M, Hassan A, Henze M, Kaufman M, Lawless B, Lee H, Lindzon L, Lomax LB, McAndrews MP, Menna-Dack D, Minassian BA, Mulligan J, Nabbout R, Nejm T, Secco M, Sellers L, Shapiro M, Slegr M, Smith R, Szatmari P, Tao L, Vogt A, Whiting S, Carter Snead O 3rd. (2017) Epilepsy: Transition from pediatric to adult care. Recommendations of the Ontario epilepsy implementation task force. Epilepsia. 58(9):1502-1517. doi: 10.1111/epi.13832.
 
 Nabbout R, Andrade DM, Bahi-Buisson N, Cross H, Desquerre I, Dulac O, Granata T, Hirsch E, Navarro V, Ouss L, Pearl PL, Schmidt D, Thiele E, Camfield PR, Camfield CS. (2017) Outcome of childhood-onset epilepsy from adolescence to adulthood: Transition issues. Epilepsy Behav. 69:161-169. doi: 10.1016/j.yebeh.2016.11.010. 
 
 Nabbout R, Camfield CS, Andrade DM, Arzimanoglou A, Chiron C, Cramer JA, French JA, Kossoff E, Mula M, Camfield PR. (2017) Treatment issues for children with epilepsy transitioning to adult care. Epilepsy Behav. 69:153-160. https://doi.org/10.1016/j.yebeh.2016.11.008
 
Borlot F, Andrade DM. (2016) Epilepsy Transition: Let’s start planting the seed. Eur J Paediatr Neurol. 20(4):684-5. https://doi.org/10.1016/j.ejpn.2016.04.006
 
Borlot F, Tellez-Zenteno JF, Allen A, Ali A, Snead OC 3rd, Andrade DM. (2014). Epilepsy transition: challenges of caring for adults with childhood-onset seizures. Epilepsia. 55(10):1659-66. https://doi.org/10.1111/epi.12752